Achondroplasia Research Conference

The inaugural Achondroplasia Research Conference took place May 24-26 at the Sheraton Baltimore North Hotel in Towson, Maryland.

Researchers from BioMarin and Therachon gave presentations on their latest research and development focused on achondroplasia.

Dr. William G. Mackenzie from A.I. duPont Hospital for Children| Nemours and Drs. John E. Herzenberg and Shawn C. Standard from the International Center for Limb Lengthening in Baltimore, Maryland each gave presentations about orthopedic issues related to achondroplasia – spine, Limb Lengthening for Achondroplasia and New Techniques of Limb Lengthening – this included seeing real internal rods (NuVasive) that these doctors use on patients today.

With over 50 attendees, parents were able to learn directly from the pharmaceutical companies, doctors and medical representatives at the event.

We would like to thank Therachon and BioMarin for making this event possible.


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