The Chandler Project hosted the 3rd Annual Achondroplasia Research Conference, a hybrid event, on July 2 & 3 in Baltimore, Maryland. Over 100 attendees from 21 countries: 
got to hear from and interact with world-renowned physicians and researchers from Nemours/Alfred I. duPont Hospital for Children, Children’s National Hospital, Murdoch Children’s Research Institute, International Center for Limb Lengthening, BioMarin Pharmaceutical, Inc., Pfizer, Ascendis Pharma, and QED therapeutics.
Although it was offered worldwide (thanks to technology) it is the ONLY event for those in North America to learn about new research and developments, both pharmaceutical and surgical, in the treatment of achondroplasia, and soon other forms of dwarfism and skeletal dysplasia, in a safe environment without any fear of conflict or controversy. Spreading awareness of this important and time-sensitive information empowers this community of families to make informed personal decisions.
Check back soon for information on the 2022 conference!
Thank you to our presenters:
- William G. Mackenzie, MD, FRCSC
Chairman, Department of Orthopaedics
Nemours/A I duPont Hospital for Children - Andrew Dauber, MD, MMSc
Chief of Endocrinology
Children’s National Hospital - Professor Ravi Savarirayan MB, BS (Adel.); MD (Melb.); FRACP; ARCPA (Hon.)
Group Leader, Skeletal Therapies I Murdoch Children’s Research Institute
Consultant Clinical Geneticist I Victorian Clinical Genetics Services
Professorial Fellow I University of Melbourne - John E. Herzenberg, MD, FRCSC, FAAOS
Director of Pediatric Orthopedics at Sinai Hospital
Director of the International Center for Limb Lengthening, Rubin Institute for Advanced Orthopedics - Shawn C. Standard, MD, FAAOS
Head of Pediatric Orthopedics, International Center for Limb Lengthening
RIAO, Sinai Hospital - Anil Bhave, PT
Clinical Director of Orthopedic Rehabilitation and Director of Wasserman Gait Laboratory
International Center for Limb Lengthening, ICLL, RIAO, Sinai Hospital - Laura Guido, PharmD, MBA, BCPS
Medical Director, Medical Sciences
North America Medical Lead, Achondroplasia
Global Medical Affairs
BioMarin Pharmaceutical, Inc. - Alyssa Galloway
Manager, Global Patient Advocacy & Engagement
BioMarin Pharmaceutical, Inc. - Christian Czech
Senior Director, Head of Pfizer Research Nice
Pfizer, Rare Disease Research Unit - Adeboa Giwa, MD
Associate Medical Director, Clinical Development
Ascendis Pharma, Inc. - Daniela Rogoff, MD, PhD
Vice President, Clinical Development
QED Therapeutics, a BridgeBio Company - Anne Lee
Director, Global Patient Advocacy
QED Therapeutics, a BridgeBio Company
Thank you to our 2021 Sponsors & Supporters!
