Nurse Vic’s Notes

Victoria Garcia, RN is a nurse of 12 years dedicated to the care of mothers and neonates in the postpartum and pediatric care settings. When her daughter Julia was diagnosed with achondroplasia in utero, Victoria channeled her nursing expertise and maternal intuition into advocacy. Her career has come full circle as she now empowers others by advocating for the latest medical research, protocols, and treatments. Visit Julia’s Advocacy for more information.

julia’s advocacy

The content on this page is notes written by Victoria from presentations at The Chandler Project’s Annual Achondroplasia & Skeletal Dysplasia Research Conference (PHARMACHON) in 2023 and 2024.

Disclaimer: “I am not a physician, and the information provided below is my best understanding of the medical data presented at the conference. It is not intended to treat or give medical advice. I do not give my permission for the information below to be edited.” – Victoria Garcia, RN

New treatment options for genetic bone disorders – annotated by victoria garcia, r.n.
Expert panel Q&A + Pharmacokinetics of VOXZOGO – annotated by victoria garcia, r.n.
Propel 3 study: infigratinib – annotated by victoria garcia, r.n.
The development of recifercept for achondroplasia – annotated by victoria garcia, r.n.