The Chandler Project recently partnered with PicnicHealth for an empowering achondroplasia community webinar on how to advocate for your child in a medical setting! Chandler Crews, founder of The Chandler Project, and Victoria Garcia, RN, are both expert achondroplasia advocates who shared and discussed their experiences advocating at the doctor’s office. The following topics were discussed:
Tips for advocating for yourself and child in a medical setting
How medical records can help you advocate for yourself
Sharing the VISTA study – how you can join and contribute to ACH research from home
and Resources you can lean into for extra support.
How to advocate for your child with achondroplasia in a medical setting
Healthcare needs good data. At PicnicHealth, we are building deep real-world datasets fueling cutting edge research while giving patients control of their own medical record data. These complete, clinically-rich datasets produce unique insights – across dozens of diseases – to ultimately get the right treatments into patients’ hands faster. We do this by working directly with patients and leveraging state of the art machine learning and human curation to transform messy medical records into structured, research-ready datasets. To date, we’ve helped tens of thousands of patients securely access their records and proactively contribute to advancing research in diseases that impacts their lives.
We partner with some of the largest life sciences companies (including 10 of the Top 30) and have raised more than $100M including a recently closed $60M Series C led by B Capital Group, with continued investments from Felicis Ventures and Amplify Partners, who also participated in the Series B. – Picnic Health, Linkedin