Welcome to the 2020 Virtual Achondroplasia Research Conference! Although we were unable to meet in Chicago this year, I’m excited that we can still get together to learn from lead researchers and experts dedicated to the treatment of achondroplasia.
This year, we have an agenda filled with information and resources on the latest research and development surrounding achondroplasia, including surgical treatment options.
Attendees will hear presentations from Professor Ravi Savarirayan from Murdoch Children’s Research Institute, research leaders of BioMarin, Pfizer, QED Therapeutics, and Ascendis Pharma. Each company will give an overview of their product followed by a 15 minute Q&A session moderated by Dr. Janet Legare from the Waisman Center Bone Dysplasia Clinic.
Drs. John Herzenberg, Shawn Standard, and Philip McClure from the International Center for Limb Lengthening at the Rubin Institute for Advanced Orthopedics in Baltimore, Maryland are world-renowned for their treatment of limb alignment issues and limb lengthening for achondroplasia and other forms of skeletal dysplasia.
As someone with achondroplasia, I hope this conference will provide you with all of the information needed to better understand the science behind achondroplasia and to learn more about what surgical options are available.
I look forward to seeing you on your screens on Saturday, September 5!