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We are paying close attention to official reccomendations regarding the coronavirus (COVID-19). We will continue to monitor this situation, while moving forward with the conference. All registrants will be immediatly notified and a notice will be posted here if the situation changes, but for now the conference remains on as scheduled. As we are only 10 weeks away, our group is not anticipated to be over 150. For any families who feel safer driving than flying we will cover the cost of hotel parking.

Please email if you have any questions or concerns. 


The second annual Achondroplasia Research Conference will take place May 22-24 (Memorial Day Weekend) in Chicago, IL at the Chicago Marriott Downtown Magnificent Mile Hotel.

Representatives from BioMarin, Pfizer, BridgeBio|QED, and Ascendis Pharma will present the latest on their respective pipelines.

Dr. William Mackenzie from A.I. duPont|Nemours will give a brief overview of Achondroplasia and spinal issues related to achondroplasia. Drs. John Herzenberg and Shawn Standard from the Rubin Institute for Advanced Orthopedics will present on limb alignment and limb lengthening options as well as new surgical advancements.

A free orthopedic clinic will be available throughout the weekend.

See below for the schedule of events.

Friday, May 22
5:00 p.m. – 8:00 p.m. | Guest Check-in
6:00 p.m. – 8:00 p.m. | Patient/Family Meet & Greet; Dinner on own

Saturday, May 23
7:30 a.m. – 8:30 a.m. | Breakfast
8:30 a.m. – 9:20 a.m. | Dr. Mackenzie, Achondroplasia
9:20 a.m. – 9:50 a.m. | BioMarin, Vosoritide
9:50 a.m. – 10:20 a.m. | Pfizer, Recifercept
10:20 a.m. – 10:30 a.m. | Morning Break
10:30 a.m. – 11:00 a.m. | Ascendis – TransCon CNP
11:00 a.m. – 11:30 a.m. | QED – Infigratinib
11:30 a.m. – 12:00 p.m. | Pharma Panel Q&A
12:00 p.m. – 1:00 p.m. | Lunch
1:00 p.m. – 2:00 p.m. | Dr. Herzenberg, Limb Alignment and Limb Lengthening for Achondroplasia
2:00 p.m. – 3:00 p.m. | Dr. Standard, New Surgical Techniques
5:30 p.m. – 6:30 p.m. | Social Hour
6:30 p.m. – 9:00 p.m. | Dinner

Sunday, May 24
9:00 a.m. – 11:30 a.m. | Stop-in Brunch & Goodbyes

Registration is $40.00 PER PERSON. Children 12 and under are FREE.
Room rate for the hotel: $159.00/night.

Thank you to our supporters!

Interested in sponsoring the 2020 event? Click here for 2020 sponsorship opportunities.

Last year, The Chandler Project hosted the inagural Achondroplasia Research Conference in Baltimore, Maryland.

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