Svein O. Fredwall, Jennifer Linge, Olga de Vries, Olof Dahlqvist Leinhard, Heidi Beate Eggesbø, Harald Weedon-Fekjær, Mikael Petersson, Per Widholm, Grethe Månum & Ravi Savarirayan Orphanet Journal of…
Achondroplasia
Did you know that more than 90% of rare diseases are still without an FDA-approved treatment? On November 19, 2021, the U.S.…
We’re halfway through February! Which means, we’re halfway through Rare Disease Month! In honor of Valentine’s Day, this post focuses…
May 20, 2022
Clinical Trials Day 2022
Did you know May 20 is Clinical Trials Day? Clinical Trials Day is a day to dedicated to…
April 25, 2022
The Perfect Date: National DNA Day
The perfect date: April 25th…because it’s not too hot, not too cold. All you need is a light…
via Clinical Trials Arena by William Newton. Vosoritide’s uncertain long-term efficacy may limit European coverage of what could…
Established in 2018, The Chandler Project provides advocacy, awareness, research and support to those affected by achondroplasia, the most common form of dwarfism, and other skeletal dysplasias. TCP hosts the only event in North Amercia that brings together members of the skeletal dysplasia community physicians, researchers, biotech industries and more together at the annual Achondroplasia + Skeletal Dysplasia Research Conference.