A child’s first day of school can be a daunting experience – both for the new student and their anxious parents. But when your child is just a little bit different – like five-year-old Floyd Henry Morley – the first day of school brings with it a whole new host of challenges. Floyd was born …
Category: Achondroplasia
#RareDiseaseDay 2019
Out now – new official #RareDiseaseDay video! Watch Filip and Alina’s story. He is from Romania and lives with achondroplasia Share the video to raise awareness of rare diseases for Rare Disease Day 2019. #ShowYourRare Rare disease day is on February 28!
The Chandler Project
As our first project, we are currently working on a weekend event dedicated to learning about new research and surgical options for achondroplasia. Our goal is to then turn this into a bigger event where new research and medical advancements are presented for other forms of skeletal dysplasias, including achondroplasia, as well as (or and) congenital …