Equity for those living with a rare disease is equitable access to diagnosis, treatment, health, social care and opportunity. WHAT IS…
We’re halfway through February! Which means, we’re halfway through Rare Disease Month! In honor of Valentine’s Day, this post focuses…
Any disease affecting fewer than 200,00 people in the United States is considered rare. Today, 25+ million Americans are living with…
70% of genetic rare diseases start in childhood. Many rare diseases may result in the premature death of…
Did you know that rare diseases affect an estimated 350 million people worldwide? According to the National Organization…
Pfizer punts pair of orphan drugs amid rare disease R&D rethink Pfizer, amid a rethink of its rare…
Established in 2018, The Chandler Project provides advocacy, awareness, research and support to those affected by achondroplasia, the most common form of dwarfism, and other skeletal dysplasias. TCP hosts the only event in North Amercia that brings together members of the skeletal dysplasia community physicians, researchers, biotech industries and more together at the annual Achondroplasia + Skeletal Dysplasia Research Conference.