As our first project, we are currently working on a weekend event dedicated to learning about new research and surgical options for achondroplasia. Our goal is to then turn this into a bigger event where new research and medical advancements are presented for other forms of skeletal dysplasias, including achondroplasia, as well as (or and) congenital limb differences.
For this first achondroplasia focused event, we are looking at Memorial Day weekend in Baltimore, Maryland
Please fill out this form to stay up to date regarding information and registration for the event.
If you are interested in attending this event or want to sponsor please email: firstname.lastname@example.org