Kickoff to Rare Disease Month

Did you know that rare diseases affect an estimated 350 million people worldwide?

According to the National Organization for Rare Disorders, achondroplasia, the most common form of dwarfism, is considered a rare disease.

Follow all month long as we share more facts about achondroplasia and rare diseases. Then, on February 28, 2023 (Rare Disease Day), join the global audience of people who recognize Rare Disease Day.

WHAT IS RARE DISEASE DAY?

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.

Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year.
Rare Disease Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organization partners. Rare Disease Day provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national and international levels.