Any Disease Affecting Fewer Than 200,000 People in the U.S. is considered rare

Any disease affecting fewer than 200,00 people in the United States is considered rare. Today, 25+ million Americans are living with a rare disease.

Did You Know that 1 in 25,000 children are born with achondroplasia? Because of this statistic, achondroplasia is considered rare. All across the globe, there are about 250,000 people living with achondroplasia.

Established in 2018, The Chandler Project provides advocacy, awareness, research and support to those affected by achondroplasia, the most common form of dwarfism, and other skeletal dysplasias. TCP hosts the only event in North Amercia that brings together members of the skeletal dysplasia community physicians, researchers, biotech industries and more together at the annual Achondroplasia + Skeletal Dysplasia Research Conference.

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