Equity for those living with a rare disease is equitable access to diagnosis, treatment, health, social care and opportunity.
WHAT IS EQUITY?
Equity in practice means meeting people’s specific needs and eliminating barriers preventing their full participation in society.
On Rare Disease Day we call for action for people living with a rare disease to have equal opportunities to realize their full participation in family, work and social life.
The long-term goal of Rare Disease Day over the next decade is increased equity for people living with a rare disease and their families.