Equity for Those Living with a Rare Disease is Equitable Access to Diagnosis, Treatment, Health, Social Care and Opportunity

Equity for those living with a rare disease is equitable access to diagnosis, treatment, health, social care and opportunity.

WHAT IS EQUITY?
Equity in practice means meeting people’s specific needs and eliminating barriers preventing their full participation in society.

On Rare Disease Day we call for action for people living with a rare disease to have equal opportunities to realize their full participation in family, work and social life.

The long-term goal of Rare Disease Day over the next decade is increased equity for people living with a rare disease and their families.

CLICK HERE TO LEARN MORE ABOUT EQUITY FOR PEOPLE LIVING WITH A RARE DISEASE AND TO DOWNLOAD THE OFFICIAL RARE DISEASE DAY EQUITY TOOLKIT

Established in 2018, The Chandler Project provides advocacy, awareness, research and support to those affected by achondroplasia, the most common form of dwarfism, and other skeletal dysplasias. TCP hosts the only event in North Amercia that brings together members of the skeletal dysplasia community physicians, researchers, biotech industries and more together at the annual Achondroplasia + Skeletal Dysplasia Research Conference.

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