Health Ministry announces introduction of Achondroplasia drug for children patients
SOURCE: AGENDA.GE
Agenda.ge, 14 Nov 2023 – 15:18, Tbilisi,Georgia
Vosoritide, a medication used for the treatment of achondroplasia among children patients, is now available in Georgia, the country’s Ministry of Health confirmed to the Georgian Public Broadcaster on Tuesday.
The development follows requests by parents of children diagnosed with the illness, which along with slowing bone growth, can cause a number of health issues, for state efforts to introduce the drug to the country, with the medication set to be issued to only four children in the first stage “due to the critical need”.
We are very happy. The dream of so many years has come true, [and] the struggle has paid off. Tomorrow, my son will be the first child in Georgia to receive this medicine, followed by the other three children”
Keti Begiashvili, one of the parents, said in reaction to the news.
Parents said the medicine would be administered at a multidisciplinary paediatric inpatient facility over a month, with the Children’s Central Hospital in Tbilisi selected for the purpose.
The initial phase will be followed by parents administering the medicine to their children at home.
The introduction was preceded by months of the protests by the parents, with the demonstrations followed by the Government including achondroplasia in the list of rare diseases, and granting the patients the status of disabled persons.
The Ministry of Health also developed a national protocol for the management of achondroplasia and prescribed Vosoritide as one of the means of treatment.
[3188]jiliwin Official Login | Best Online Slots PH with GCash Bonus,Experience the thrill of Jiliwin, the Philippines’ premier online casino. Register today for an official account to enjoy top-rated online slots, live casino games, and exclusive bonuses. Download the Jiliwin app for seamless gaming on the go! visit: jiliwin
The customer support is actually helpful which is rare these days. I had a small issue with my deposit and they sorted it in minutes. Give au8802com a go.
[9870]sgcasino ???? ? ????? ??????? | ????? ?????? ???????? ????,sgcasino ???? ???? ??? sgcasino app download ??? ???? ???? ??? ???? ????? ????? ????? ???? ?????? ???????? ???? ??? ??? ???? ??? ???? ????? visit: sgcasino
The app version is even better than the web. Super snappy and the login is instant. I’m really impressed with bjapplogin.
Finally found a site that actually treats players right. Great variety of options and the customer support is top notch. Highly recommend idayam11
The slots here are honestly amazing. I had a great run last night and the graphics are just stunning. For all slot lovers, aurahokislot is the way to go.
I’ve tried a few sites lately and this one really stands out. The interface is smooth and the payouts are surprisingly fast. Definitely my new go-to spot. Check it out at brnnbet42
Really impressed with the security and the transparency of the games here. It feels safe to play and win. Look at pkk777bd