Think Beyond the Extremities – Complications in Skeletal Dysplasia
Watch the LLRS 2019 Presidential Guest Lecture: Think Beyond the Extremities – Complications in Skeletal Dysplasia by William G. Mackenzie, MD, FRCSC, FACS.
Achondroplasia
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Little legend: Child with rare form of dwarfism begins his biggest adventure yet
A child’s first day of school can be a daunting experience – both for the new student and their anxious parents. But when your child is just a little bit…
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#RareDiseaseDay 2019
Out now – new official #RareDiseaseDay video! Watch Filip and Alina’s story. He is from Romania and lives with achondroplasia Share the video to raise awareness of rare diseases for Rare Disease Day 2019. #ShowYourRare…
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The Chandler Project
As our first project, we are currently working on a weekend event dedicated to learning about new research and surgical options for achondroplasia. Our goal is to then turn this into…
